Tracking Trace

The Great Eight!

Posted in Daily Updates by Amy Kimler on April 30, 2009

We are in for round number 8 of 12. It really does go by fast- which is a good thing. Trace’ll is on 6A again which means only 2 visitors in the room at a time. That is hard when you have a mom, dad, brother and a sister who want to see you and each other all at the same time! We should go home on Monday.

The Big Swim and tennis round robin is set for May 29 at Bluegrass Yacht and Country Club. We are very excited! Details are at thebigswim.us. Thank you to friend and Hendersonville for supporting Trace’ll.

We went to watch Maddie in the Indian Lake Elementary talent show today before going to the hospital. She and four friends did the evolution of dance and it was really good. Lil’ Fighter saw a poster about the big swim up at school and was thoroughly impressed! We also got to see Cole Booney’s name on the honor roll list. (and Maddie’s as well) That was great! Only 14 more days of school. Yay!!

When we got to our room there was a phone call asking us to come out to the lobby. We were in for a wonderful surprise! Jennifer Dunn was out there to meet Trace. Her son, Chase Donnell, was the little guy who was supposed to be a stick boy for the Predators last year, but never got to. Upon learning Chaser’s story, Trace has really kept him in his heart. He is in heaven and we know he is watching over us. Chase’s Daddy, Clint, ran in the 1/2 marathon and special t-shirts were made that said Chase me for a cure. Trace’s name was on them also. What an honor! It was wonderful to meet Jennifer and Trace has talked about the meeting quite a bit.

Thank you all again for your love and support. I feel like everything is really going smoothly. Trace’ll had few side effects from the last chemo. (no worsening of neuropathy, few mouth sores…) Hopefully, the few side effects will continue. This is the chemo that tends to cause ‘booting’. (for those of you who don’t know, this is Coach Kovach’s term for throwing up and we have adopted it) Pray for no booting!!

We should talk to the pulmonary Dr (lung) soon about the radiation of the right middle lobe. I wish their office would call soon! I want to know what is going on with that!

Love to you all,

The Kimlers

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Posted in Daily Updates by Amy Kimler on April 18, 2009

 

Melissa Titans Cheerleader, Trace'll #9 and Jordin TooToo #22 Predators

Melissa Titans Cheerleader, Trace'll #9 and Jordin TooToo #22 Predators

Trace’ll Completes Round #7! No Booting Allowed!!

Posted in Daily Updates by Amy Kimler on April 18, 2009

Trace’ll got into his room Thursday afternoon and got started with his chemo. We were supposed to finish Saturday evening around 8pm, but because he tolerates the chemo so well they increased the rate of the infusion and we finished around 2:30pm. Yay! Lil Fighter spent his days riding the stationary bike, doing lunges and squats, watching hockey games, movies and playing hockey video games. He had a great appetite (with no booting) as evidenced by the fact he sent Chris and me to McDougal’s (really good place near Vandy) for chicken four times!

When we were in the oncology clinic on Thursday waiting on a room we had a big surprise… Jordin TooToo #22 walked in to see Trace. He had two beautiful blondes with  him- Rebecca, who we already know and love and Melissa, a Titans cheerleader. Melissa promised to send Trace a bathing suit calendar which he is eagerly awaiting! It was great to see Jordin and all of the kids in the clinic were super excited. Once again, those Predators are the BEST!! They should get more press for this!

We are glad to be home and even more glad to be closer to the finish line!

Thank you Granny for everything!

Check out thebigswim.us for information on the swim-a-thon and tennis round robin in honor of Trace’ll and Vanderbilt Children’s Hospital.

Thank you,

Amy

Trace’s Pathology Report (for scapula)

Posted in Daily Updates by Amy Kimler on April 14, 2009

I wanted to clarify the information about Trace’s scapular tumor. When the surgeon removed the scapula, he took out all of the tumor. After the scapulectomy, the scapula was sent to the lab to determine how much the chemotherapy had reduced the tumor. The scapular tumor was decreased by >98% which is great! The edges of the removed scapula were cancer free, so no radiation to the scapular area. Trace will still have 6 more rounds of chemo because this is the protocol for Ewing’s sarcoma and also to kill any cancer cells that may be dormant or undetectable. This is to increase Lil Fighter’s odds of remaining cancer free.  He will have radiation to the lung (R middle lobe) due to the size of the tumor on diagnosis. This area is also responding very well to the treatment, but radiation is recommended to again decrease the chance of reoccurrence. When Ewing’s sarcoma metastasizes to the lungs (which is the most common site for mets) this is the protocol that has proven most effective and that is the route we want to go! 

Trace’ll is glad to be back in school. He is caught up with his make-up work from the week he missed with surgery and will take TCAPs soon after this round of chemo. Hopefully, he will only miss Thurs and Fri and will be good for next week. He is already back in the garage shooting pucks (he hasn’t gotten to put on ice skates or roller blades yet, but that will come soon) and his shoulder seems to be getting stronger and feeling better every day. He basically never complains.

We want to thank everyone again for all of the kind deeds. The meals are delicious. The Traceries (unsure about the spelling 🙂 ROCK!! I am pretty sure Trace’ll enjoys the goodies and gifts as well. I know he is growing up because his most recent goodie was a calendar of the Predators Ice Girls and they were wearing bathing suits! That got a really big smile from him. The cards really help to keep Trace’ll motivated and the prayers are being answered every day.We pray for  you guys, too.

We love you all,

Amy

Posted in Daily Updates by Amy Kimler on April 12, 2009

 

Kimler family Easter 2009

Kimler family Easter 2009

Happy Easter!

Posted in Daily Updates by Amy Kimler on April 12, 2009

We  had a great Easter going to church and then to an Easter egg hunt at the Lycans’. Trace’ll had fun hunting eggs (you will keep hunting into your adult years if your parents put money in the eggs-trust me, I hunted eggs until I had my own children because my grandparents put money in them!) and was able to use his left arm to hold the basket. We had a fun time and were especially joyous at the good news of the scapular tumor being >98% gone!!

When we found out the news about the scapula, Trace did not seem overly excited. Friday night I asked him if he understood what that meant. He said he did understand. I asked him why he didn’t seem very excited to which he said, “Mom, I knew what the news was going to be. I knew it would be gone.” and smiled. Doesn’t that sum up his attitude this whole time? He has totally put this in the hands of God and is being rewarded for his belief.

Thank you for your continued prayers. I hope everyone had a wonderful Easter and a great week ahead. We will be heading to the hospital on Thursday for chemo round #7.

God Bless you all,

Amy

Kimler Kids Easter 2009

Kimler Kids Easter 2009

Lil Fighter Is Winning The Big Fight

Posted in Daily Updates by Amy Kimler on April 10, 2009

We went to our appointment with the surgeon, Dr. Herbert Schwartz, today and got GREAT results! The scapular tumor was reduced by >98% and the edges were cancer free which means no radiation to this area. Trace’ll was very excited and so were we! This is a great Easter surprise!!

Lil Fighter is going back for chemo round #7 (of 12) on Thursday, April 16. He will have radiation to his R middle lobe of his lung toward the end of his chemotherapy. He should  begin physical therapy in about 2 weeks, but can do whatever he FEELS like doing at this point.

The stitches were removed and Trace’ll agreed it was no big deal. Yay!!

Bluegrass Yacht and Country Club in Hendersonville is sponsoring a Swim-a-thon and tennis round robin on May 29. We are very excited about that. It is for Trace and Vanderbilt Children’s Hospital.

On the weekend of April 25 if the Music City Tennis Tournament. This benefits Vanderbilt Children’s Hospital.  Check that out!

Have a wonderful Easter,

Amy

Trace’ll Has Follow Up With Surgeon On Friday

Posted in Daily Updates by Amy Kimler on April 8, 2009

Trace’ll has a follow-up appointment with the surgeon on Friday. I am assuming he will remove the stitches (Lil Fighter is not too excited about this), let him start physical therapy and tell us the results of the bone pathology. Pray for clean, cancer free edges! We should go back for chemo on April 16 (Thursday) and we will know soon when radiation will begin.

We were at the Predators game last night. A tear jerker! Hopefully, we can still make it to the playoffs. We got to meet Glenn, a fellow Ewing’s Sarcoma survivor, and that was great!

Enjoy this beautiful day and we will let you know what the Dr. has to say!

Amy

A Big Thank You From Lil Fighter!

Posted in Daily Updates by Amy Kimler on April 6, 2009

Hey Everyone, 

I just wanted to tell you all that I am doing great. Thank you all for getting on my blog and giving me your support. Knowing that you are all supporting me also lets me know that I will beat cancer because we have bigger numbers than cancer! I also wanted to thank the Predators players, coaches, staff,  and Rebecca Ward for making me feel like a part of the team. I know the Predators are a part of our team against cancer. 

My shoulder is still a little sore, but I can lift most all of it except for the upper part already. When I saw the incision it kind of made me think I had been attacked by a bear instead of by a surgeon. But I know that is not true because the surgeons did their job. I will do my job by getting well and beating this cancer. 

Thanks for all of the support,

Trace Kimler aka Lil Fighter #9

Posted in Daily Updates by Amy Kimler on April 5, 2009

 

The back of Trace'll after scapulectomy

The back of Trace'll after scapulectomy

 

No matter what Trace'll keeps a smile on his face and a positive attitude!

No matter what Trace'll keeps a smile on his face and a positive attitude!